rosemary1991 Posted September 16, 2021 Share Posted September 16, 2021 My 2 month old daughter was diagnosed with a congenital heart defect on Tuesday 9/14. We had no idea she had a heart problem until her pediatrician heard a murmur at her 2 month check-up. We did a fetal echo in utero at 34 weeks and her heart looked normal. No murmur at birth nor at her 1 month check. Then out of nowhere it appeared, like a thief in the night. We saw a pediatric cardiologist who confirmed she has Bicuspid Aortic Valve Disease (BAVD) with mild-moderate aortic stenosis currently. We are doing a follow-up echo on Nov 1 to see if it gets worse, better, or stays the same. I guess I'm just posting to ask for prayers. Or if anyone else has a child with BAVD or aortic stenosis to give me encouragement. I'm obviously terrified for her life and my stress and anxiety levels are through the roof. Her name is Sofie. Prayers for her health and safety. And for my anxiety to decrease. I'm having multiple panic attacks daily. Link to comment Share on other sites More sharing options...
chrysostom Posted September 16, 2021 Share Posted September 16, 2021 praying! Link to comment Share on other sites More sharing options...
Ash Wednesday Posted September 16, 2021 Share Posted September 16, 2021 I will keep you and Sofie in my prayers. Link to comment Share on other sites More sharing options...
KnightofChrist Posted September 16, 2021 Share Posted September 16, 2021 I will pray. When I was a boy I had a similar heart problem, my family prayed to the Sacred Heart Jesus. https://www.ewtn.com/catholicism/devotions/novena-prayer-to-the-sacred-heart-311 Link to comment Share on other sites More sharing options...
CatherineM Posted September 17, 2021 Share Posted September 17, 2021 Praying. I lost a nephew to a hole in his heart in 1972. There has been lots of improvement since then in treatment. His doctor helped design some of them. Link to comment Share on other sites More sharing options...
MIKolbe Posted September 17, 2021 Share Posted September 17, 2021 Our daughter had an ASD and this community prayed for her! I will pray for your daughter. Link to comment Share on other sites More sharing options...
dUSt Posted September 17, 2021 Share Posted September 17, 2021 Link to comment Share on other sites More sharing options...
Makarioi Posted September 17, 2021 Share Posted September 17, 2021 I will keep Sophie, you and your family in my prayers Link to comment Share on other sites More sharing options...
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