Anyone Else With Rsd/crps?

[FutureCarmeliteClaire]

I have Reflex Sympathetic Dystrophy sometimes known as Complex Regional Pain Syndrome as a result of my battle with Thoracic Outlet Syndrome.

 

Does anyone else here have this and any advice for natural ways to deal with the pain? I take medicine just about every day for the pain, but I just despise taking pills.

 

[PhuturePriest]

You should meet up with a Shaolin Monk who is a Kung Fu master in China and see if he will heal you of your infirmities.

[Spem in alium]

I'm sorry to hear that. My best friend got CRPS as a result of a neurological virus she got about three years ago which made her unable to walk (she's walking now, but uses a walking frame/stick to make things easier). It sounds like such a difficult thing to be dealing with. 

 

I'm not entirely sure what she does to treat it herself, but I could ask her if you'd like - she wouldn't mind. She's medicated but I have no idea if she uses natural remedies. I know she was in rehab for a while last year and was doing some physical therapy which helped her get from a wheelchair to a walking frame, but other than that I'm not too sure what else she does.

 

Prayers for you. You're so brave, Claire.

 

 

 

 

 

 

[Tufsoles]

I am going with PT as well. Massage, if you are comfortable with it. Tai Chi without the religious aspects. I understand your point of view on despising taking pills, there is alot more people out there that don't want to do the same thing.

[HisChildForever]

I am going with PT as well. Massage, if you are comfortable with it. Tai Chi without the religious aspects. I understand your point of view on despising taking pills, there is alot more people out there that don't want to do the same thing.

 

Massage - I agree. Avoid a deep tissue massage, you want something very soothing.

 

Meditation, hot bath (hot tub?)

[Lil Red]

ask around for someone who was trained in nursing homes or hospices as part of their training for massage. I have a friend who is licensed and she did a long rotation at a hospice - as a result, she gives really awesome but gentle massages. 

[FutureCarmeliteClaire]

I'm still going to physical therapy and have been referred to a massage therapist, which I am thrilled about since the massages at PT have worked really well for me.

Praise God it only affects my shoulders, neck, arms, and hands (particularly neck and shoulders). So I am still able to walk. It's still not fun, but thankful I have full use of my legs now.

Luckily I weaned myself off of the heavy medication, but I take ibuprofen and Tylonel every day, and I'm really sick of it. Thankful I don't have the side-effects from the stuff I had been taking anymore, but I'd rather be taking no medication. I guess that's a reality for me now, but if there are other things that can help, I'd like to go that route.

[CatherineM]

Regular Tylenol, water aerobics, and headphones with contemporary christian music or audio book. Use it a bit like bio feedback. Heavy duty pain killers don't work. They just shut down your body's natural pain killers. My pain is a bit like background noise now. The funny thing is if I get something else that hurts, headache, ingrown toe, etc. I just go nuts. It's like the straw that sends the camel into max gross load.

[FutureCarmeliteClaire]

Regular Tylenol, water aerobics, and headphones with contemporary christian music or audio book. Use it a bit like bio feedback. Heavy duty pain killers don't work. They just shut down your body's natural pain killers. My pain is a bit like background noise now. The funny thing is if I get something else that hurts, headache, ingrown toe, etc. I just go nuts. It's like the straw that sends the camel into max gross load.

TOTALLY get this.

 

Thanks for the advice!!