LittleWaySoul Posted August 17, 2012 Share Posted August 17, 2012 [quote name='FutureCarmeliteClaire' timestamp='1345174116' post='2468974'] Thank you. Oh my goodness, it's very ironic that you say that. I have a huge devotion to Blessed Chiara. She's one of my patronesses! And role-models, and everything else. The beauty of a suffering soul. Thanks so much! [/quote] Ever since I found out about her, I feel like she's taken me under her wing, almost. I love her so much. I've never had a biological sister, so I like to think of her as an older sister of sorts. She's especially relevant to me now that I'm 18. That's the age she died at. Also, she is Italian and I used to speak Italian But anyways, I just love her so much! Link to comment Share on other sites More sharing options...
missionseeker Posted August 17, 2012 Share Posted August 17, 2012 [quote name='FutureCarmeliteClaire' timestamp='1345173219' post='2468959'] Alright, results are back. I have a small shadowing with no outline on my pituitary gland that could be a micro-tumor, but it is un-identifiable. Next step is an appointment with another endocrinologist, back with my rheumatologist to get an MRI of my shoulder, some more bloodwork and hopefully a diagnosis! Oh I'm getting braces a week from today! Just found out yesterday, and went to my orthodontist appointment today. Have it scheduled for next Thursday... I need them because my adult K-9s are in the wrong place and my baby ones have not fallen out yet, so they have to put in the braces, then brackets later, then hope they come down in the right place, and if not, oral surgery here I come! I'm not too worried about it because we know what it is, it's been seen before, and it's not the worst case my orthodontist has seen! (The worst he saw was the person's K-9s coming out of their nose! ) But I'm really okay with all this, because it's just a part of my life. And hey, picking colors will be fun! You know, I've been doing OK emotionally lately. It's definitively all the prayers. I still need that vent session then distraction every few days, but I'm okay. I can do all things in Christ who gives me strength! I'll be fine, but keep up the prayers! At least I stopped feeling like I'm going clinically insane (BIG STEP). Love you all so much, FCC Fun fact: I've grown an inch in the past month after not having grown in a year! I guess there are down and up sides to this... Haha! [/quote] For the first couple of months, you're going to be like "is this really worth it?" (the braces) but then you start to have a prettier smile and everything lines up and you'll think that it's totally worth it. The very first of them is the worst, and it WILL get less irritating. I'm glad you have some sort of an answer. Prayers for fuller ones! Link to comment Share on other sites More sharing options...
CatherineM Posted August 17, 2012 Share Posted August 17, 2012 Can you have MRIs with braces on? Link to comment Share on other sites More sharing options...
FutureCarmeliteClaire Posted August 17, 2012 Author Share Posted August 17, 2012 [quote name='CatherineM' timestamp='1345216221' post='2469174'] Can you have MRIs with braces on? [/quote] As SOON as I saw this I ran over to my mom and asked. She's calling my doctor now... Sigh. Oh gosh... [quote name='missionseeker' timestamp='1345175380' post='2468986'] For the first couple of months, you're going to be like "is this really worth it?" (the braces) but then you start to have a prettier smile and everything lines up and you'll think that it's totally worth it. The very first of them is the worst, and it WILL get less irritating. I'm glad you have some sort of an answer. Prayers for fuller ones! [/quote] Yeah, it's kind of a meh feeling. I'm trying to have fun with it, though. I'm getting teal and purple colors. Thanks for the prayers! Link to comment Share on other sites More sharing options...
AnneLine Posted August 17, 2012 Share Posted August 17, 2012 (edited) Oh, Claire! no doubt the dentists will know, but perhaps some of the 'invisible' plastic ones could be used if you have to stay away from the metal... and then later change into the pretty ones when the MRI season is over.... Whenever I think of braces, I remember the funny experience a friend of mine had back when they were all silver metal. He got an entire mouth full of them, and to make him feel better, the family took him out for his favorite meal, Chinese food with lots of veges.... but he got bean sprouts all stuck in his braces and they had to take them off & put them back on again! (So stay away from those bean sprouts!) You are a remarkable, strong, resiliant woman, and one day I bet you will look back on this and just wonder WHAT the Good Lord thought He was doing.... I am sure He has a good reason, but it sure seems like a lot all at once, doesn't it! Edited August 17, 2012 by AnneLine Link to comment Share on other sites More sharing options...
FutureCarmeliteClaire Posted August 17, 2012 Author Share Posted August 17, 2012 [quote name='AnneLine' timestamp='1345218798' post='2469188'] You are a remarkable, strong, resiliant woman, and one day I bet you will look back on this and just wonder WHAT the Good Lord thought He was doing.... I am sure He has a good reason, but it sure seems like a lot all at once, doesn't it! [/quote] Link to comment Share on other sites More sharing options...
AnneLine Posted August 17, 2012 Share Posted August 17, 2012 If you get those pretty braces, they will go nicely with your pretty blush. Link to comment Share on other sites More sharing options...
IcePrincessKRS Posted August 18, 2012 Share Posted August 18, 2012 [quote name='FutureCarmeliteClaire' timestamp='1345173219' post='2468959'] Alright, results are back. I have a small shadowing with no outline on my pituitary gland that could be a micro-tumor, but it is un-identifiable. Next step is an appointment with another endocrinologist, back with my rheumatologist to get an MRI of my shoulder, some more bloodwork and hopefully a diagnosis! Oh I'm getting braces a week from today! Just found out yesterday, and went to my orthodontist appointment today. Have it scheduled for next Thursday... I need them because my adult K-9s are in the wrong place and my baby ones have not fallen out yet, so they have to put in the braces, then brackets later, then hope they come down in the right place, and if not, oral surgery here I come! I'm not too worried about it because we know what it is, it's been seen before, and it's not the worst case my orthodontist has seen! (The worst he saw was the person's K-9s coming out of their nose! ) But I'm really okay with all this, because it's just a part of my life. And hey, picking colors will be fun! You know, I've been doing OK emotionally lately. It's definitively all the prayers. I still need that vent session then distraction every few days, but I'm okay. I can do all things in Christ who gives me strength! I'll be fine, but keep up the prayers! At least I stopped feeling like I'm going clinically insane (BIG STEP). Love you all so much, FCC Fun fact: I've grown an inch in the past month after not having grown in a year! I guess there are down and up sides to this... Haha! [/quote] Ugh, a couple of my siblings and I had the same issue with our canine teeth. We all wound up in the oral surgeon's chair. Hopefully you can avoid it! The surgery wasn't so awful for me; they put me to sleep for it, and after it was over I convinced my mom to take me to the mall to get a few things I needed for my college wardrobe. And I ate lots of pudding. lol I've been praying for you, I'm glad things are moving closer to having a real diagnosis. You're a tough cookie. Even if you feel bad venting, keep doing it because if nothing else it reminds us to keep praying for you. Link to comment Share on other sites More sharing options...
FutureCarmeliteClaire Posted September 1, 2012 Author Share Posted September 1, 2012 As you heard this morning, I went to the ER. My left arm was swollen and purple. I had blood tests and a sonogram of my whole arm because they thought there might be an arterial problem or a clot. Everything seemed normal. In fact, after the sonogram, my arm looked less purple because they had to squeeze it. The doctor told us I am hyperreflective in my left arm (over active reflexes, I believe). He basically said to add this to the list of stuff to tell the endocrinologist I am seeing next week. Praise God, I made it to Confession on the way there. Please continue to keep me in your prayers. For You, Jesus. If You want it, I want it too. Link to comment Share on other sites More sharing options...
IcePrincessKRS Posted September 1, 2012 Share Posted September 1, 2012 Still praying for you. I'm sorry you had such a scare this morning, but I guess the ER doc is right, it gives the endocrinologist one more thing to look at to help figure out what's going on. Link to comment Share on other sites More sharing options...
FutureCarmeliteClaire Posted September 10, 2012 Author Share Posted September 10, 2012 PRAISE BE JESUS CHRIST! I saw the orthopedist today. It's been two years since I've seen him for my scoliosis, and we decided to go to him for this issue. I was really doubtful about going at first. I expected that once again a doctor would say there's nothing they can do and to go see someone else. My orthopedist is very blunt. He criticized the way I had been treated by the doctors thus far. He said that people my age simply do not get shoulder impingement unless it's an injury or a over-use injury. And we know I didn't have either. He said that physical therapy that makes pain worse is not the right kind of therapy. FINALLY SOMEONE UNDERSTANDS. I had some x-rays today and all that seemed normal. The first possibility he brought up is TOS (Thoracic Outlet Syndrome), which is a rare medical disorder that can be fixed in a handful of ways. He said that all of my symptoms (excluding the endocrine stuff) would fall under that disease. So, he said he wants me to see a friend of his who is an orthopedic surgeon that specializes in shoulders. Then he is going to talk to his friend about their findings. My orthopedist wants to be the main point for this search, and no one has so far. So this is absolutely fantastic. Finally someone is realizing that constant severe pain and a purple arm is completely not normal, and needs to be treated better. Finally someone is willing to help. Thank goodness. We have a plan of action!! But wait, the best part is next. ......................................... ....................................................... ..................................................................... .......................................................................... .................................................................................. We called his friend's office and they got me an appointment for FRIDAY. As in, this Friday. I was so shocked. I will tell you all right now, I have not smiled like this in 4 months. I don't think I have been this happy in 4 months. I am thrilled that someone actually gives a croutons about my issues and sees it as something that needs to be figured out. Also, he did an exam and he looks at my shoulders and says, "Interesting..." and then says, "Sorry! I know that is not what you want to hear from a doctor." He's the only one who has even cared about that. Thank you all so much for the prayers! We see the endocrinologist on Wednesday and the shoulder specialist on Friday, so keep them coming. Love you all so much, FCC Link to comment Share on other sites More sharing options...
Lil Red Posted September 10, 2012 Share Posted September 10, 2012 wonderful news! Link to comment Share on other sites More sharing options...
arfink Posted September 10, 2012 Share Posted September 10, 2012 amesome! Link to comment Share on other sites More sharing options...
i<3franciscans Posted September 10, 2012 Share Posted September 10, 2012 So happy for you FCC!!! I will keep praying! <3fran Link to comment Share on other sites More sharing options...
PhuturePriest Posted September 10, 2012 Share Posted September 10, 2012 [quote name='FutureCarmeliteClaire' timestamp='1347299415' post='2481004'] PRAISE BE JESUS CHRIST! I saw the orthopedist today. It's been two years since I've seen him for my scoliosis, and we decided to go to him for this issue. I was really doubtful about going at first. I expected that once again a doctor would say there's nothing they can do and to go see someone else. My orthopedist is very blunt. He criticized the way I had been treated by the doctors thus far. He said that people my age simply do not get shoulder impingement unless it's an injury or a over-use injury. And we know I didn't have either. He said that physical therapy that makes pain worse is not the right kind of therapy. FINALLY SOMEONE UNDERSTANDS. I had some x-rays today and all that seemed normal. The first possibility he brought up is TOS (Thoracic Outlet Syndrome), which is a rare medical disorder that can be fixed in a handful of ways. He said that all of my symptoms (excluding the endocrine stuff) would fall under that disease. So, he said he wants me to see a friend of his who is an orthopedic surgeon that specializes in shoulders. Then he is going to talk to his friend about their findings. My orthopedist wants to be the main point for this search, and no one has so far. So this is absolutely fantastic. Finally someone is realizing that constant severe pain and a purple arm is completely not normal, and needs to be treated better. Finally someone is willing to help. Thank goodness. We have a plan of action!! But wait, the best part is next. ......................................... ....................................................... ..................................................................... .......................................................................... .................................................................................. We called his friend's office and they got me an appointment for FRIDAY. As in, this Friday. I was so shocked. I will tell you all right now, I have not smiled like this in 4 months. I don't think I have been this happy in 4 months. I am thrilled that someone actually gives a croutons about my issues and sees it as something that needs to be figured out. Also, he did an exam and he looks at my shoulders and says, "Interesting..." and then says, "Sorry! I know that is not what you want to hear from a doctor." He's the only one who has even cared about that. Thank you all so much for the prayers! We see the endocrinologist on Wednesday and the shoulder specialist on Friday, so keep them coming. Love you all so much, FCC [/quote] I am so happy for you, and that you found the right doctor for the job. I will of course continue praying several times a day for you. Link to comment Share on other sites More sharing options...
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